Eosinophilic Esophagitis (EoE) Just Diagnosed Patient Toolkit

This toolkit brought to you with support from:

If you or a loved one has just been diagnosed with Eosinophilic Esophagitis (EoE), you are not alone.

Gastro Girl has curated evidence-based resources to help you better understand EoE, treatment options, and where you can find additional support and information.

What You Need to Know

LISTEN

Living and Thriving With EoE

May 14, 2024

Where Can I Find Resources For Eosinophilic Disorders?

Patients have told us they often feel lonely when they or a loved one has been diagnosed with a chronic gastrointestinal condition, such as an eosinophilic disorder like eosinophilic esophagitis (EoE). We invited Mary Jo Strobel, the Executive Director of The American Partnership for Eosinophilic Disorders (Apfed), to help address this major patient and caregiver stressor: “Where can I go for support and resources and connect with others going through similar health journeys?” Mary Jo explains all the resources Apfed has available to patients as well as parents navigating an eosinophilic disorder for their children

May 14, 2024

Elimination Diet Therapy For Eosinophilic Esophagitis

Eosinophilic Esophagitis (EOE) is a chronic allergic condition that occurs in the esophagus, with diagnoses on the rise in recent years. That’s why we asked registered dietitian, Amanda Lynett, to share her expertise on treating EoE with elimination diet therapy. Amanda gives her input on how to approach elimination diets safely, and an inside look at her course designed to help patients navigate the ins and outs of EoE food triggers in everyday life. Check out Amanda’s course here: education.giondemand.com.

May 14, 2024

Eosinophilic Esophagitis (EoE) Webinar Series Part 4: Living and Thriving

After finding the right multidisciplinary care team and undergoing treatment for a period of time, you’re starting to feel more like yourself. Your EoE is in remission. Swallowing food is no longer a fear-inducing practice. You have a better understanding of what may trigger your EoE and how to avoid those situations. You’re thriving! Part 4 of our 4-part Eosinophilic Esophagitis (EoE) Education Program contains success stories of EoE patients from the doctor’s perspective, so you can understand what remission and/or success could mean for you.

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Insights for Parents of Children with EoE

May 14, 2024

How is Eosinophilic Esophagitis (EoE) Treated in Children?

Pediatric Gastroenterologist Dr. Sophia Patel of the Cleveland Clinic explains the presentation of Eosinophilic Esophagitis (EoE) in children and what parents and caregivers should know about treatment options that are available for children. Dr. Patel also explains the progressive nature of EoE and why treatment adherence is key to successful management of EoE. She also shares tips to help older adolescents or young adults maintain their treatment plans. This episode is brought to you by Sanofi Regeneron.

May 14, 2024

Growing Up With Eosinophilic Esophagitis (EoE)

EoE is a chronic, allergic inflammatory disease of the esophagus that can leave adults struggling with their diet. So imagine if you were in our guest, Kathleen Sable’s shoes, and your infant son was diagnosed with this rare disease. Kathleen details her caregiver journey, and the steps she had to go through to give her son, Jeremy, as normal an upbringing as possible. Jeremy also joins us in this heartwarming mother/son patient story to share his perspective and what living with EoE means for him today.

May 14, 2024

The Role of Shared Decision Making As Pediatric EoE Patients Transition To Adult Care

For most parents, helping their child who has a chronic digestive health condition, like Eosinophilic Esophagitis (EoE), transition from pediatric to adult health care is a big step. In this episode, Pediatric Gastroenterologist Dr. Amanda Muir and Gastroenterologist Dr. Kristle Lee Lynch, highlight the process and offer guidance for pediatric EoE patients (and their parents) on what to expect as they transition to adult GI care. Both doctors offer tips and insight for parents and young EoE patients to help make this handoff more manageable, including what happens to the parents’ role during and after their child’s transition to adult care and how to prepare young adult EoE patients for managing their own health care.

LISTEN

Dietary & Nutrition Insights

May 14, 2024

Elimination Diet Therapy For Eosinophilic Esophagitis

Eosinophilic Esophagitis (EOE) is a chronic allergic condition that occurs in the esophagus, with diagnoses on the rise in recent years. That’s why we asked registered dietitian, Amanda Lynett, to share her expertise on treating EoE with elimination diet therapy. Amanda gives her input on how to approach elimination diets safely, and an inside look at her course designed to help patients navigate the ins and outs of EoE food triggers in everyday life. Check out Amanda’s course here: education.giondemand.com.

May 14, 2024

How is Eosinophilic Esophagitis (EoE) Treated in Children?

Pediatric Gastroenterologist Dr. Sophia Patel of the Cleveland Clinic explains the presentation of Eosinophilic Esophagitis (EoE) in children and what parents and caregivers should know about treatment options that are available for children. Dr. Patel also explains the progressive nature of EoE and why treatment adherence is key to successful management of EoE. She also shares tips to help older adolescents or young adults maintain their treatment plans. This episode is brought to you by Sanofi Regeneron.

May 14, 2024

How A Registered Dietitian Can Help You Manage Your GI Symptoms

If you are living with a digestive health condition and want to better understand the impact certain foods may have on your symptoms, or how a Registered Dietitian (RD) can help you manage your GI health, don’t miss this episode! Beth Rosen, a “Non-Diet” Registered Dietitian specializing in the Health At Every Size approach, explains the role of an RD, shares tips for managing symptoms of IBS, GERD, and SIBO and among other digestive conditions, and gives us a sneak peek into her educational courses on GI OnDemand University. Check out Beth’s courses here education.giondemand.com.

LISTEN

Related Resources You May Find Helpful

May 14, 2024

New Research Insights: Does Eosinophilic Esophagitis (EoE) Presentation and Treatment Response Differ in Ethnic and Racial Minority Patients?

Eosinophilic Esophagitis (EoE) is increasingly recognized as a major cause of swallowing difficulties in children and adults. It affects about one in 2,000 people. But the differences in EoE presentation and outcomes by ethnicity and race remain understudied. Dr. Evan Dellon from the University of North Carolina School of Medicine at Chapel Hill is here to explain EoE and discuss the recent findings of a study he co-authored, “Clinical Features and Treatment Response to Topical Steroids in Ethnic and Racial Minority Patients With Eosinophilic Esophagitis.” We focus on what patients need to know about the main findings, as well as tips for patients to begin discussing their symptoms and treatment options with their provider. This episode is brought to you by Sanofi Regeneron.

May 14, 2024

Why Do I Have Difficulty Swallowing Food and Liquids?

The feeling of having something stuck in your throat is often a terrifying experience. And if you or a loved one are constantly struggling or are adapting the way you eat to swallow food, your esophagus is likely not functioning properly. We welcome back Dr. Pooja Singhal, a Gastroenterologist at SSM Health St. Anthony’s Hospital in Oklahoma City, OK, to explain what’s going on with the esophagus and the way it is functioning when someone is struggling to swallow. She provides an overview of the various digestive disorders that can affect one’s ability to swallow food, how it’s possible for swallowing liquid to be a problem, and highlights the adaptive eating behaviors you may not realize you’re doing, which are warning signs you should see your doctor.

May 14, 2024

How Can a Clinical Pharmacist Help Me Manage My GI Condition?

Patients with chronic GI health conditions like inflammatory bowel disease (IBD) often have complex treatment plans that require multiple medications. They may also have other health conditions like heart, kidney or liver disease that require several medications in addition to the medications prescribed by their gastroenterologist. In this episode Gastroenterologist Dr. Tauseef Ali and Clinical Pharmacists Carrie Breeden and Sarah Elkoubysi from SSM Health St. Anthony Hospital in Oklahoma, explain the vital role clinical pharmacists play as members of the GI healthcare team. They provide eye-opening insight on how clinical pharmacists work with gastroenterologists and help patients fully understand their treatment options; the benefits and potential side effects of the medications they are being prescribed; and how these medications may interact with other lifestyle considerations, like diet, smoking and alcohol use.

Is Your EoE Well Controlled?

Are you living eosinophilic esophagitis (EoE) and not responding to current treatment or dietary interventions? Not sure how to talk with your doctor about your symptoms or ask about other treatment options? Then this online tool is for you!

Your answers to these questions can help your healthcare provider better understand your symptoms and quality of life with EoE. Once you complete this brief questionnaire, your answers will be emailed to you for easy sharing with your healthcare provider.

Use this tool to prepare for a productive  conversation with your doctor about:

  • EoE symptoms
  • Symptom frequency and severity
  • Treatment goals

 

READ

Latest Clinical Guidelines
and Research

May 18, 2023

Admission Trends for Food Impaction and Foreign Body Associated With Eosinophilic Esophagitis

The prevalence of eosinophilic esophagitis (EoE) is estimated to be 0.5-1 in 1000 and is increasing across the United States. New cases of EoE are being diagnosed, in part due to increased awareness of the disease. Recent epidemiological studies have demonstrated that the natural course of EoE is a progressive transformation from an inflammatory to a complicated fibrostenotic disease. Increased prevalence has driven sentiment for an evidence-based management algorithm for EoE. We identified trends in hospital admissions for complicated EoE demonstrated by food impactions/foreign bodies (FI/FB) and highlight gaps in the current management.

Read Full Article
May 18, 2023

Diagnostic Delay in Patients With Eosinophilic Esophagitis Has Not Changed Since the First Description 30 Years Ago: Diagnostic Delay in Eosinophilic Esophagitis

Eosinophilic esophagitis (EoE) is a chronic progressive disease. Diagnostic delay (DD) is associated with increased risk of esophageal strictures and food impactions. We aimed to assess the evolution of DD since the first description of EoE in 1993 until 2021.

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May 18, 2023

ACG Clinical Guideline: Evidenced Based Approach to the Diagnosis and Management of Esophageal Eosinophilia and Eosinophilic Esophagitis (EoE)

Esophageal eosinophilia and eosinophilic esophagitis (EoE) are increasingly recognized and prevalent conditions, which now represent common clinical problems encountered by gastroenterologists, pathologists, and allergists. The study of EoE has become a dynamic field with an evolving understanding of the pathogenesis, diagnosis, and treatment.

Read Full Article
May 18, 2023

Disease Burden and Unmet Need in Eosinophilic Esophagitis

Eosinophilic esophagitis (EoE) is a chronic, progressive, type 2 inflammatory disease of increasing prevalence, characterized by symptoms of dysphagia and reduced quality of life. A dysregulated type 2 immune response to food and aeroallergen leads to barrier dysfunction, chronic esophageal inflammation, remodeling, and fibrosis. Patients with EoE have impaired quality of life because of dysphagia and other symptoms.

Read Full Article
WATCH

EoE Education
Webinar Series

May 14, 2024

Eosinophilic Esophagitis (EoE) Webinar Series Part 1: Undiagnosed and Suffering in Silence

Do you or a loved one have trouble swallowing food? Does food ever get stuck in your throat? Do you or a loved one take longer to eat than everyone else and/or drink with every bite to help get the food down? If you answered yes to one or more of these questions, then you or your loved one may have a condition called Eosinophilic Esophagitis (EoE).

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May 14, 2024

Eosinophilic Esophagitis (EoE) Webinar Series Part 2: Just Diagnosed

You or a loved one has just been diagnosed with Eosinophilic Esophagitis (EoE). What does that mean in the short term and the long term? How does this condition impact your quality of life? What treatment options are available? How will you manage new experiences that may include medications, therapy, or diet interventions? This webinar may lead you to some answers.

Read More
May 14, 2024

Eosinophilic Esophagitis (EoE) Series Part 3: Diagnosed With EoE But Not Under A Doctor’s Care

You’ve been diagnosed with EoE but have not been maintaining a consistent regimen with a healthcare provider. Perhaps treatment results haven’t been optimal, or put simply, life got in the way. You’re not alone.

Read More
May 14, 2024

Eosinophilic Esophagitis (EoE) Webinar Series Part 4: Living and Thriving

After finding the right multidisciplinary care team and undergoing treatment for a period of time, you’re starting to feel more like yourself. Your EoE is in remission. Swallowing food is no longer a fear-inducing practice. You have a better understanding of what may trigger your EoE and how to avoid those situations. You’re thriving!

Read More
WATCH

Featured Resources

May 14, 2024

EOSINOPHILIC ESOPHAGITIS (E0E) 101: WHAT YOU NEED TO KNOW

Gastroenterologist Dr. Milli Gupta shares her expertise on Eosinophilic Esophagitis (EOE), an allergic condition in the esophagus that has serious physical and mental implications for struggling patients. We breakdown exactly what is happening in your throat during a flare up, symptoms that should trigger a call to your doctor, treatment options, and what to expect from food elimination diets designed to identify the triggers that can cause a flare up. This episode is brought to you by The American College of Gastroenterology’s Patient Care Committee.

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May 14, 2024

What Primary Care and Emergency Providers Need To Know About Eosinophilic Esophagitis In Adults

Dr. Pooja Singhal, a Gastroenterologist in Oklahoma City, OK offers some helpful tips and suggested questions that may help primary or emergency care providers recognize the clinical presentation of Eosinophilic Esophagitis (EoE) in adults. She also stresses the importance of not only referring the patient to a gastroenterologist post-ER or primary care office visit, but explains how vital it is to follow up with the patient and make sure they see the gastroenterologist.

Read More
May 14, 2024

The Role of Shared Decision Making As Pediatric EoE Patients Transition To Adult Care

For most parents, helping their child who has a chronic digestive health condition, like Eosinophilic Esophagitis (EoE), transition from pediatric to adult health care is a big step. In this episode, Pediatric Gastroenterologist Dr. Amanda Muir and Gastroenterologist Dr. Kristle Lee Lynch, highlight the process and offer guidance for pediatric EoE patients (and their parents) on what to expect as they transition to adult GI care. Both doctors offer tips and insight for parents and young EoE patients to help make this handoff more manageable, including what happens to the parents’ role during and after their child’s transition to adult care and how to prepare young adult EoE patients for managing their own health care.

Read More
May 14, 2024

Elimination Diet Therapy For Eosinophilic Esophagitis

Eosinophilic Esophagitis (EOE) is a chronic allergic condition that occurs in the esophagus, with diagnoses on the rise in recent years. That’s why we asked registered dietitian, Amanda Lynett, to share her expertise on treating EoE with elimination diet therapy. Amanda gives her input on how to approach elimination diets safely, and an inside look at her course designed to help patients navigate the ins and outs of EoE food triggers in everyday life. Check out Amanda’s course here: education.giondemand.com

Read More

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