What Should I Know About Lynch Syndrome and Colorectal Cancer?

Lynch syndrome is a hereditary form of colorectal cancer. It is estimated that 1 in 279 people in the United States have this genetic predisposition but over 90% those people don’t even know it. Today’s guest, patient advocate Dave Dubin, was one of those people when he was first diagnosed with cancer at age 29. Dave is a 3x cancer survivor and has since started a non-profit foundation, Alive and Kick’n, (https://www.aliveandkickn.org/) to spread awareness of this genetic condition. Dave shares his patient story, the importance of genetic testing and early detection of cancers in the body, and how he’s managed to live a full and vibrant life despite his condition.

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Dave Dubin

Three-Time Cancer Survivor and Patient with Lynch Syndrome

In 1997 at age 29, David Dubin was surprised to learn of his colon cancer diagnosis. Although his grandfather and father both had colon cancer, he didn’t associate his bleeding and cramping to symptoms of the disease. Neither did his primary care physician who neglected to recommend a colonoscopy, despite his family history. Not until several months later when he finally saw a specialist did David learn he had colon cancer.

It wasn’t until 2007 and a second colon cancer diagnosis that David had genetic tested and found out he has Lynch syndrome. David Dubin is now a three-time cancer survivor and patient with Lynch Syndrome, a genetic mutation that predisposes individuals to cancer. David is a fierce advocate and public speaker for awareness, screening and genetic testing. As a founder of AliveAndKickn, a patient-centered nonprofit organization dedicated to education, advocacy, and research of Lynch Syndrome, David is committed to actively helping patients and researchers combat this disease.

Along with his wife Robin, David has developed AliveAndKickn to focus on providing resources for Lynch syndrome patients and developing innovative tools like The HEROIC Registry to further research. They continue to work towards expanding outreach and education about Lynch syndrome in the clinical communities and to the general public. AliveAndKickn’s mission is to improve the lives of individuals and families affected by Lynch Syndrome and associated cancers through research, education, and screening.

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